Index
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Advocacy and Other Supports |
- The Americans with Disability Act
- U.S. Department of Justice Americans with Disabilities Act Home Page. Includes
information such as information on ADA design standards, guide to disability rights
laws, ADA Q & A, employment myths, and various links and resources.
- www.ada.gov
- Association of Self Advocates of North Carolina
- ASANC is committed to providing services to enable, educate, encourage, and
empower people in the community. We enable people to become more independent and
empowered to make their own decisions. We educate the community, government
leaders, families, guardians and service providers about self-advocacy and the
ABILITIES of people with disabilities. We encourage and empower people with
disabilities to take responsibility for their lives, to help bring about change,
and to strive for equality, acceptance and full inclusion in society.
- www.asa-nc.org
- The Autism Society of North Carolina
- The Autism Society of North Carolina provides support and promotes
opportunities which enhance the lives of individuals within the autism spectrum
and their families. Information is available for parents, professionals and
individuals.
- www.autismsociety-nc.org
- Autism Speaks
- Autism Speaks is a North American autism science and advocacy organization.
The organization is dedicated to funding research into the causes, prevention,
treatments and a cure for autism; increasing awareness of autism spectrum
disorders; and advocating for the needs of individuals with autism and their
families. Autism Speaks’ family resources include such items as the Autism Video
Glossary, a 100 Day Kit for newly-diagnosed families, a School Community Tool Kit,
and a community grant program.
- www.autismspeaks.org
- The Disability Resources Monthly (DRM) Guide to Disability Resources on the Internet
- Disability Resources, inc. seeks to promote and improve awareness, availability
and accessibility of information that can help people with disabilities live, learn,
love, work and play independently. They have an extensive list of links to resources
for those living in North Carolina.
- www.disabilityresources.org/NORTH-CAROLINA.html
- Disability Rights North Carolina
- Designated by the Governor in 2007 to ensure the rights of all state citizens
with disabilities through individual advocacy and system change, DRNC is part of a
national system of federally mandated independent disability agencies. Disability
Rights helps people across North Carolina gain access to services and opportunity
through its legally based advocacy. We work for justice upholding the fundamental
rights of people with disabilities to live free from harm in the communities of
their choice, with the opportunity to participate fully and equally in
society.
- www.disabilityrightsnc.org
- Disability.gov
- Comprehensive disability-related information and resources from the federal government.
- www.disabilityinfo.gov
- Select North Carolina for local information and resources.
- Division of MH/DD/SAS Office of Advocacy and Customer Services
- The Advocacy and Customer Service Section is one of the five sections in the
Division of Mental Health, Developmental Disabilities and Substance Abuse Services.
They report their role is to support advocacy and consumer choice, ensure rights
protection in the community and the state operated facilities and to promote consumer
empowerment. Their staff includes consumers and family members. They will answer your
questions, help resolve your complaints and process your appeals. They have three teams
to assist you: Consumer Empowerment Team, Customer Service and Community Rights Team,
and the State Facilities Advocates Team.
- State Care-Line — Information and Referral Service TTY/Voice/Spanish: 1-800-662-7030
- www.dhhs.state.nc.us/mhddsas/consumeradvocacy
- Division of Services for the Blind
- DSB’s mission is to enable people who are blind or visually impaired to reach
their goals of independence and employment. Our services include the following:
assessment; instruction in daily living, technology, travel and other adaptive
skills; job-related training, job counseling, placement and follow-up; and eye
care related medical services. Individualized services may be provided in the
home, workplace or agency facilities. Services are available in every county for
individuals who meet program eligibility guidelines.
- www.dhhs.state.nc.us/dsb/index.htm
- Division of Services for the Deaf and Hard of Hearing
- The Division of Services for the Deaf and the Hard of Hearing serves
individuals who are Deaf, Hard of Hearing, Deaf-Blind, their families and
the communities in North Carolina by enabling them to achieve equal access,
effective communication and a better quality of life. Services target
individuals, businesses, schools and a wide variety of public and private
agencies. Resources include information on deaf services, hard of hearing
services, deaf-blind services, emergency preparedness, regional libraries,
assistive equipment, and information on interpreting.
- www.dhhs.state.nc.us/dsdhh
- Exceptional Children’s Assistance Center
- ECAC is a private non-profit parent organization committed to improving the
lives and education of children through a special emphasis on children with
disabilities. They provide information, education, outreach, and support to and
for families with children across the state of North Carolina. Information
includes parent education packets/workshops, NC Early Intervention-Early Childhood
On-line Library, and a toll-free information hotline.
- www.ecac-parentcenter.org
- First in Families of North Carolina
- The goal of First In Families of North Carolina is to support people with
developmental disabilities and their families to create the lives they want now
and in the future. We oversee twelve regional FIF Chapters across North Carolina.
The First in Families local Chapters offer support to families and individuals
according to their self-defined needs. Examples of supports include recreational
items, home furnishings or modifications, childcare or respite, or repairs to
vehicles. Support can also be the connecting of an individual to vocational,
social, and educational opportunities in the community; whatever it takes - for
people to live and participate fully in their community.
- www.firstinfamiliesofnc.org
- North Carolina Consumer Advocacy, Networking and Support Organization (NCCANSO)
- NC-CANSO is a consumer-operated organization that seeks to represent and address the needs and goals of persons who use mental health, developmental disability and/or substance abuse services.
- www.nc-canso.org
- NCcareLINK
- The People with Disabilities Connection Neighborhood at NCcareLINK is a statewide
link to resources and services. Some services include supports for living
independently, residential care, communication and technology, community advocacy
and employment.
- www.nccarelink.gov/default.aspx?se=disabilities
- NC Council on Developmental Disabilities (NCCDD)
- NCCDD reports that their mission is to ensure that people with developmental disabilities and their families participate in the design of and have access to culturally competent services and supports, as well as other assistance and opportunities, which promote inclusive communities.
- www.nc-ddc.org
- National Council on Disabilities
- NCD is an independent federal agency and is composed of 15 members appointed
by the President, by and with the advice and consent of the Senate. It provides
advice to the President, Congress, and executive branch agencies to promote
policies, programs, practices, and procedures that guarantee equal opportunity
for all individuals with disabilities, regardless of the nature or severity of
the disability and to empower individuals with disabilities to achieve economic
self-sufficiency, independent living, and inclusion and integration into all
aspects of society.
- www.ncd.gov
- The National Down Syndrome Society
- The mission of the National Down Syndrome Society is to be the national
advocate for the value, acceptance and inclusion of people with Down syndrome.
This site includes such information as fact sheets, education, policy, and
self-advocacy.
- www.ndss.org
- NC Disability Action Network (NC DAN)
- The NC Disability Action Network (NC DAN) brings members of the disability community together to claim our power as citizens and take ACTION as a unified force on issues of local, state and national concern for North Carolinians with disabilities.
- www.ncdan.org
- NC Health Information
- NC Health Info is an online guide to web sites of health and medical information
and local health services throughout North Carolina. Links on NC Health Info are
selected and maintained by North Carolina librarians.
- www.nchealthinfo.org
- A component of NC Health Info is the
NC Go
Local database, a collection of Web links to more than 6,000 web sites of local
health facilities in all 100 of North Carolina’s counties.
- Partnerships in Assistive Technology
- Partnerships in Assistive Technology is a non-profit organization dedicated
to increasing access to assistive technology and information technology for North
Carolinians with disabilities through training, equipment recycling, advocacy,
and technical assistance.
- They partner with state agencies, non-profit groups, the Southeast ADA Center
and grassroots disability groups to help make communities accessible for people
with disabilities and to ensure access to the tools they need to live
independently, work, access educational and recreational opportunities, and
participate in community events.
- www.pat.org
- This list is not complete. The websites above may include links to other organizations that provide support and advocacy for the Developmental Disability community.
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Authorizations for State-Funded DD Services |
- eg. Developmental Therapy, Personal Assistance, Personal Care Services, Respite,
Residential
- For information on service authorizations for state-funded services, refer to the
“
Authorization Information” section in the Provider Section of this website.
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CAP—MR/DD |
- General Information on CAP-MR/DD
- The Community Alternatives Program for Persons with Mental Retardation/
Developmental Disabilities (CAP-MR/DD) is a special Medicaid program started
in 1983 to serve individuals who would otherwise require care in an intermediate
care facility for people with the mental retardation/developmental disabilities
(ICF/MR). It allows these individuals the opportunity to be served in the community
instead of residing in an institutional or group home setting.
- CAP-MR/DD operates under a Medicaid home and community-based services waiver
granted by the Health Care Financing Administration (HCFA). HCFA approves the services,
the number of individuals that may participate, and other aspects of the program. To
be eligible for these services, the participants must be at risk of
institutionalization.
- ICF-MR Criteria
ICF-MR Criteria Document
- Division of MH/DD/SAS
www.ncdhhs.gov/mhddsas/cap-mrdd/index.htm/
- CAP-MR/DD Slot Request:
- The Clinical Home is the responsible party for requesting a CAP slot.
- The Case Manager begins by entering a request in the SMC BUI system (Service
Authorization Menu > CAP waitlist request for a consumer).
- The Case Manager can expect to be contacted by a SMC representative. SMC will
need to verify all the documents have been submitted to SMC, and will arrange for a
Risk Assessment.
- For general information on CAP slot requests, refer to the Guidance for Slot
Request Form from the Division:
www.ncdhhs.gov/mhddsas/cap-mrdd/cap-slotreqguidance9-29-09.pdf
- Deinstitutionalization Slot Request:
- Under limited circumstances, the Division allows Individuals who are transitioning
into the community from a State Developmental Center or a State Hospital to obtain a
CAP-DI Slot. Refer to Implementation Update # 43 - Transition of Individuals from
State Operated Facilities to the Community. for details.
www.ncdhhs.gov/mhddsas/servicedefinitions/servdefupdates/dmadmh5-5-08update43.pdf
- Be sure that all available options have been exhausted, then contact your SMC DD
Care Coordinator. (LME Operations Contact List — see link in Provider Operations
Manual, Section II - Provider Relations, “Smoky Mountain Center Contact List”)
- The Division makes the determination.
- Guardians of the Person Providing Paid Care to CAP Recipients (AKA Implementation Update #35)
Guardians of the person may provide paid waiver services to NC CAP-MR/DD recipients, if certain conditions are met. The following documents included in Implementation Update #35 provide details on this process and requirements.
- Case Managers will need to upload the Plan of Care into the SMC BUI system. They will
also need to be sure that guardian status is documented. Most providers upload into BUI
the “Letters of Appointment: Guardian of the Person” document from the Clerk of Court to
satisfy this requirement. Also let us know your fax number and mailing address. Please be
sure to have all the required elements in your request. Upon completion of our review, we
will fax and mail our recommendation letter to the case manager.
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Day Programs |
- Please see the SMC Provider Search tool on this website for a listing of services.
Find a Provider
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Documentation |
- This manual describes guidelines and procedures for documenting services.
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Emergency/Crisis Resources |
- To access an Emergency Services Department in your region, use one of the following phone numbers:
- For consumers in our Southern Region (Cherokee, Clay, Graham, Haywood,
Jackson, Macon, Swain), call 1-888-315-2880.
- For consumers in our Northern or Central Regions (Alexander, Caldwell,
McDowell, Allegheny, Ashe, Avery, Watauga, Wilkes), call 1-877-492-2785
- For any other county, call the nearest Region listed above.
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Employment – Supported Employment Agencies |
- Please see the SMC Provider Search tool on this website for a listing of services.
Find a Provider
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EPSDT (Early Periodic Screening, Diagnostic and Treatment Medicaid Services for Children) |
- Early and Periodic Screening, Diagnosis and Treatment (EPSDT) is the federal law that says Medicaid must provide all medically necessary health care services to Medicaid-eligible children. The services are required even if the services are not normally covered by children's Medicaid.
- For more information, such as procedures for requesting EPSDT services or provider documentation requirements, see the following links:
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Medicaid |
- Medicaid is a health insurance program for low-income individuals and families who
cannot afford health care costs. Medicaid serves low-income parents, children, seniors,
and people with disabilities.
- NC Division of Medical Assistance (DMA)
- The DMA manages the Medicaid and Health Choice programs, and is a division of the Department of Health and Human Services (DHHS).
www.ncdhhs.gov/dma/
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NC SNAP |
- The NC-SNAP is a needs assessment tool that, when administered properly, measures an
individual's level of intensity of need for developmental disabilities (DD) supports and
services.
- The NC-SNAP should be re-administered at least annually or whenever there is a
significant change in the individual’s need profile (e.g., the individual suffers a
debilitating stroke).
- Refer to the following document for more information on required NC SNAP submissions
to Smoky Mountain Center.
NC SNAP - SMC Info and Procedures
- For more information on NC-SNAP, see the Division website at:
www.ncdhhs.gov/mhddsas/ncsnap/index.htm
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NC START (North Carolina Systemic, Therapeutic Assessment, Respite and Treatment) Program |
- The NC START Model provides prevention and intervention services to individuals who are at least 18 years of age with developmental disabilities and complex behavioral needs through crisis response, training, consultation, and respite. The goal is to create a support network that is able to respond to crisis needs at the community level. Providing community based, person centered supports that enable an individual to remain in their home or community placement is the first priority.
- NC START does not replace any element of the current service continuum but works in conjunction with all other services
- NC START Brochure
- NC START FAQ
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North Carolina Rules and Laws |
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Residential Services |
- How to get a consumer on the wait list for a residential slot
- Download the “State Funded Residential Referral Profile” form from this website. Use the link below to view the authorization section of this website to access that form.
- The completed form should be submitted to the SMC Service Management Department via fax at 1-877-651-9968.
- Expect to receive confirmation that we have received this form within 2 business days of our receipt of your fax. If you do not hear from us, please re-send the fax or phone someone in our Service Management Department.
- NC Division of Health Service Regulation
- The Division of Health Service Regulation oversees medical, mental health and group care homes, emergency medical services, and local jails. They check to see that people receiving care in these facilities are safe and receive appropriate care. They make certain that medical buildings are built only when there is a need for them.
www.ncdhhs.gov/dhsr/index.html
- Please see the SMC Provider Search tool on this website for a listing of services.
Find a Provider
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Service Definitions |
- For DD services managed through the Division of MH/DD/SAS or DMA use the link below to view the Authorization Info section of this website for more information.
SMC Authorization Info
- Other Medicaid-funded services:
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Social Security |
- Social Security Administration
- For information on benefits such as SSI, Medicare, etc. go to the following link:
www.ssa.gov
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Supports Intensity Scale (SIS) |
- The Supports Intensity Scale™ (SIS) is a tool designed to measure the relative intensity of support each person with developmental disabilities needs to fully participate in community life. In the NC public system, individuals with CAP-MR/DD choosing to self-direct their services, and individuals with high medical and/or behavioral needs will be prioritized to have a SIS completed.
- You can access SIS forms from the Additional Downloads section of this website
www.smokymountaincenter.com/providers.asp?section=downloads
- NC Division MH/DD/SAS
www.ncdhhs.gov/mhddsas/sis/index.htm
- American Association on Intellectual and Developmental Disabilities (AAIDD)
www.siswebsite.org
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TRACK (Therapeutic Respite Addressing Crisis for Kids) |
- Crisis service for children with a Developmental Disability, age 5 – 17. Use the link
below to view the Authorization section of this website for more information.
SMC Authorization Info
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Training and Education |
- Developmental Disabilities Training Institute
- The Institute works to share knowledge, skills, and foster improvements of
services and supports for persons with developmental disabilities in North
Carolina in a variety of ways. This goal is currently accomplished through
providing community based training events, technical assistance, and the
development of training tools.
- www.unc.edu/depts/ddti/
- Diagnostic Manual—Intellectual Disability (DM-ID)
- A manual developed by the National Association for the Dually Diagnosed (NADD)
in association with the American Psychiatric Association (APA) that is an
adaptation of the DSM-IV-TR. The title of this manual is DM-ID: A Textbook of
Diagnosis of Mental Disorders in Persons with Intellectual Disability. An abridged
version is published as DM-ID: A Clinical Guide for Diagnosis of Mental Disorders
in Persons with Intellectual Disability
- www.dmid.org/clin-intro.htm
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Traumatic Brain Injury (TBI) |
- NC statute defines TBI as a Developmental Disability. Use the link below to view the TBI section of this website for more information.
SMC TBI Webliography
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Disclaimer:
The links in this document are provided as a convenience to readers of this webpage. Smoky Mountain Center is not responsible for their content. In addition, please note that information provided here is not a substitute for professional clinical advice.
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