General Information

Updates on I/DD services Communication Bulletins relevant to I/DD services rules and procedures. See the “Communication Bulletins” section on the Service Provider tab of this website for the most recent announcements. Definitions: North Carolina DHHS definition of Intellectual and Developmental Disability SMC I/DD Cross-functional Team The Intellectual and Developmental Disability Workgroup is a sub-committee of the Clinical Operations Committee. This workgroup was established to improve services for those with intellectual and developmental disabilities [as defined by N.C. General Statues G.S. 122 C-3 (12a)] within our provider network SMC Provider Operations Manual Refer to the “Consumer Admission into the LME” section of the “SMC Provider Operations Manual” for info on clinical home responsibilities such as entering registration, target population, claims, transferring consumers between service providers and discharges. LME Operations Contact List [see link in Provider Operations Manual, Section II - Provider Relations, “Smoky Mountain Center Contact List”] Agencies Centers for Medicare and Medicaid Services (CMS) www.cms.hhs.gov Division of Medical Assistance (DMA) www.dhhs.state.nc.us/dma/prov.htm NC Division of MH/DD/SAS www.ncdhhs.gov/mhddsas/index.htm NC Division of Vocational Rehabilitation dvr.dhhs.state.nc.us

Advocacy and Other Supports

The Americans with Disability Act U.S. Department of Justice Americans with Disabilities Act Home Page. Includes information such as information on ADA design standards, guide to disability rights laws, ADA Q & A, employment myths, and various links and resources. www.ada.gov Association of Self Advocates of North Carolina ASANC is committed to providing services to enable, educate, encourage, and empower people in the community. We enable people to become more independent and empowered to make their own decisions. We educate the community, government leaders, families, guardians and service providers about self-advocacy and the ABILITIES of people with disabilities. We encourage and empower people with disabilities to take responsibility for their lives, to help bring about change, and to strive for equality, acceptance and full inclusion in society. www.asa-nc.org The Autism Society of North Carolina The Autism Society of North Carolina provides support and promotes opportunities which enhance the lives of individuals within the autism spectrum and their families. Information is available for parents, professionals and individuals. www.autismsociety-nc.org Autism Speaks Autism Speaks is a North American autism science and advocacy organization. The organization is dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. Autism Speaks’ family resources include such items as the Autism Video Glossary, a 100 Day Kit for newly-diagnosed families, a School Community Tool Kit, and a community grant program. www.autismspeaks.org The Disability Resources Monthly (DRM) Guide to Disability Resources on the Internet Disability Resources, inc. seeks to promote and improve awareness, availability and accessibility of information that can help people with disabilities live, learn, love, work and play independently. They have an extensive list of links to resources for those living in North Carolina. www.disabilityresources.org/NORTH-CAROLINA.html Disability Rights North Carolina Designated by the Governor in 2007 to ensure the rights of all state citizens with disabilities through individual advocacy and system change, DRNC is part of a national system of federally mandated independent disability agencies. Disability Rights helps people across North Carolina gain access to services and opportunity through its legally based advocacy. We work for justice upholding the fundamental rights of people with disabilities to live free from harm in the communities of their choice, with the opportunity to participate fully and equally in society. www.disabilityrightsnc.org Disability.gov Comprehensive disability-related information and resources from the federal government. www.disabilityinfo.gov Select North Carolina for local information and resources. Division of MH/DD/SAS Office of Advocacy and Customer Services The Advocacy and Customer Service Section is one of the five sections in the Division of Mental Health, Developmental Disabilities and Substance Abuse Services. They report their role is to support advocacy and consumer choice, ensure rights protection in the community and the state operated facilities and to promote consumer empowerment. Their staff includes consumers and family members. They will answer your questions, help resolve your complaints and process your appeals. They have three teams to assist you: Consumer Empowerment Team, Customer Service and Community Rights Team, and the State Facilities Advocates Team. State Care-Line — Information and Referral Service TTY/Voice/Spanish: 1-800-662-7030 www.dhhs.state.nc.us/mhddsas/consumeradvocacy Division of Services for the Blind DSB’s mission is to enable people who are blind or visually impaired to reach their goals of independence and employment. Our services include the following: assessment; instruction in daily living, technology, travel and other adaptive skills; job-related training, job counseling, placement and follow-up; and eye care related medical services. Individualized services may be provided in the home, workplace or agency facilities. Services are available in every county for individuals who meet program eligibility guidelines. www.dhhs.state.nc.us/dsb/index.htm Division of Services for the Deaf and Hard of Hearing The Division of Services for the Deaf and the Hard of Hearing serves individuals who are Deaf, Hard of Hearing, Deaf-Blind, their families and the communities in North Carolina by enabling them to achieve equal access, effective communication and a better quality of life. Services target individuals, businesses, schools and a wide variety of public and private agencies. Resources include information on deaf services, hard of hearing services, deaf-blind services, emergency preparedness, regional libraries, assistive equipment, and information on interpreting. www.dhhs.state.nc.us/dsdhh Exceptional Children’s Assistance Center ECAC is a private non-profit parent organization committed to improving the lives and education of children through a special emphasis on children with disabilities. They provide information, education, outreach, and support to and for families with children across the state of North Carolina. Information includes parent education packets/workshops, NC Early Intervention-Early Childhood On-line Library, and a toll-free information hotline. www.ecac-parentcenter.org First in Families of North Carolina The goal of First In Families of North Carolina is to support people with intellectual/developmental disabilities and their families to create the lives they want now and in the future. We oversee twelve regional FIF Chapters across North Carolina. The First in Families local Chapters offer support to families and individuals according to their self-defined needs. Examples of supports include recreational items, home furnishings or modifications, childcare or respite, or repairs to vehicles. Support can also be the connecting of an individual to vocational, social, and educational opportunities in the community; whatever it takes - for people to live and participate fully in their community. www.firstinfamiliesofnc.org North Carolina Consumer Advocacy, Networking and Support Organization (NCCANSO) NC-CANSO is a consumer-operated organization that seeks to represent and address the needs and goals of persons who use mental health, intellectual/developmental disability and/or substance abuse services. www.nc-canso.org NCcareLINK The People with Disabilities Connection Neighborhood at NCcareLINK is a statewide link to resources and services. Some services include supports for living independently, residential care, communication and technology, community advocacy and employment. www.nccarelink.gov/default.aspx?se=disabilities NC Council on Developmental Disabilities (NCCDD) NCCDD reports that their mission is to ensure that people with intellectual/developmental disabilities and their families participate in the design of and have access to culturally competent services and supports, as well as other assistance and opportunities, which promote inclusive communities. www.nc-ddc.org National Council on Disabilities NCD is an independent federal agency and is composed of 15 members appointed by the President, by and with the advice and consent of the Senate. It provides advice to the President, Congress, and executive branch agencies to promote policies, programs, practices, and procedures that guarantee equal opportunity for all individuals with disabilities, regardless of the nature or severity of the disability and to empower individuals with disabilities to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society. www.ncd.gov The National Down Syndrome Society The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. This site includes such information as fact sheets, education, policy, and self-advocacy. www.ndss.org NC Disability Action Network (NC DAN) The NC Disability Action Network (NC DAN) brings members of the disability community together to claim our power as citizens and take ACTION as a unified force on issues of local, state and national concern for North Carolinians with disabilities. www.ncdan.org NC Health Information NC Health Info is an online guide to web sites of health and medical information and local health services throughout North Carolina. Links on NC Health Info are selected and maintained by North Carolina librarians. www.nchealthinfo.org A component of NC Health Info is the NC Go Local database, a collection of Web links to more than 6,000 web sites of local health facilities in all 100 of North Carolina’s counties. Partnerships in Assistive Technology Partnerships in Assistive Technology is a non-profit organization dedicated to increasing access to assistive technology and information technology for North Carolinians with disabilities through training, equipment recycling, advocacy, and technical assistance. They partner with state agencies, non-profit groups, the Southeast ADA Center and grassroots disability groups to help make communities accessible for people with disabilities and to ensure access to the tools they need to live independently, work, access educational and recreational opportunities, and participate in community events. www.pat.org This list is not complete. The websites above may include links to other organizations that provide support and advocacy for the intellectual and developmental disability community.

	Authorizations for State-Funded I/DD Services
eg. Developmental Therapy, Personal Assistance, Personal Care Services, Respite, Residential For information on service authorizations for state-funded services, refer to the “ Authorization Information” section in the Provider Section of this website.

	NC Innovations
Cover Letter for the NC Innovations Manual documents/dd_services/Cover_Letter_NC_Innovations_Manual.pdf NC Innovations Manual with Forms - FINAL documents/dd_services/Final_NC_Innovations_Manual_withForms_2012-06-25.pdf

	Care Coordination
Individual Support Plan - May 2012 - DRAFT documents/dd_services/Individual_Support_Plan-DRAFT_2012-05.doc

	Documentation
This manual describes guidelines and procedures for documenting services. Records Management and Documentation Manual for Providers of Publicly-Funded MH/DD/SA Services CAP-MR/DD Services and Local Management Entities. www.ncdhhs.gov/mhddsas/statspublications/manualsforms/rmd09/rmdmanual-final.pdf

Emergency/Crisis Resources

To access an Emergency Services Department in your region, use one of the following phone numbers: For consumers in our Western Region (Cherokee, Clay, Graham, Haywood, Jackson, Macon, Swain), call 1-888-315-2880. For consumers in our Northern or Central Regions (Alexander, Caldwell, McDowell, Allegheny, Ashe, Avery, Watauga, Wilkes), call 1-877-492-2785 For any other county, call the nearest Region listed above. For those under the age of 18, available resources include TRACK For more information on TRACK, use the link below to view the authorization section of this website: SMC Authorization Info For adults, available resources include I/DD Diversion and Emergency Respite. Adults living in North Carolina with an Intellectual/Developmental Disability may access Emergency Respite or I/DD Diversion services through Smoky Mountain Center. Use the link below to view the authorization section of this website for more information. SMC Authorization Info Diversion Law Senate Bill 859, also known as the Diversion Law, prohibits the admission of an individual with mental retardation, or a reasonable suspicion of such, to any of the North Carolina State Psychiatric hospitals unless the individual meets specific criteria. www.ncdhhs.gov/mhddsas/developmentaldisabilities/dd-definitions.htm#diversion For a complete reference, please refer to NCAC 122C-261(f). www.ncga.state.nc.us/EnactedLegislation/Statutes/HTML/BySection/Chapter_122C/GS_122C-261.html

	Employment – Supported Employment Agencies
Please see the SMC Provider Search tool on this website for a listing of services. Find a Provider

EPSDT (Early Periodic Screening, Diagnostic and Treatment Medicaid Services for Children)

Early and Periodic Screening, Diagnosis and Treatment (EPSDT) is the federal law that says Medicaid must provide all medically necessary health care services to Medicaid-eligible children. The services are required even if the services are not normally covered by children's Medicaid. For more information, such as procedures for requesting EPSDT services or provider documentation requirements, see the following links: NC Division of MH/DD/SAS www.ncdhhs.gov/mhddsas/epsdt/index.htm NC Division of Medical Assistance www.ncdhhs.gov/dma/epsdt/

	Incident Reporting
Refer the Division website for forms and information on incident reporting. www.ncdhhs.gov/mhddsas/developmentaldisabilities/index.htm

Medicaid

Medicaid is a health insurance program for low-income individuals and families who cannot afford health care costs. Medicaid serves low-income parents, children, seniors, and people with disabilities. For questions about adult Medicaid, refer to the DHHS Adult Medicaid Manual at the following link: info.dhhs.state.nc.us/olm/manuals/dma/abd/man/ NC Division of Medical Assistance (DMA) The DMA manages the Medicaid and Health Choice programs, and is a division of the Department of Health and Human Services (DHHS). www.ncdhhs.gov/dma/

NC-SNAP

The NC-SNAP is a needs assessment tool that, when administered properly, measures an individual's level of intensity of need for developmental disabilities (I/DD) supports and services. The NC-SNAP should be re-administered at least annually or whenever there is a significant change in the individual’s need profile (e.g., the individual suffers a debilitating stroke). For the most current procedures on submitting NC SNAP forms, please see our Operations Manual which can be located at the following link: SMC Provider Operations Manual To access the scanned copy of the NC SNAP, providers can go into the BUI system, select “Document Import and Viewing,” “View Imported Documents”, “Specify Client,” enter the consumer record number, then select “Clinical Forms” and search the list for documents with the description “NC SNAP Assessment”. For more information on NC-SNAP, see the Division website at: http://www.ncdhhs.gov/mhddsas/providers/NCSNAP/index.htm

ICF-MR

SMC is required by DMA to honor authorizations completed by VO that extend beyond June 30, 2012. ICF-MR providers do not complete the UR--utilization review--process (have their services authorized) through VO. However, SMC wants to honor the end dates of the current URs for ICF-MR residents. To do this, we are asking the ICF-MR providers to send in a copy of all current UR forms for residents whose Medicaid county of eligibility is one of the 15 SMC counties. We will use this as the end date of the "authorization"¯. We will need you to send an updated UR AT LEAST 10 days prior to the expiration of each resident's current UR. The NC Innovations LOC Determination is to be utilized when ICF-MR agencies submit UR under the Innovations Waiver. This form is to be utilized at the next UR submission for an individual served in the ICF-MR facility. Additionally, this form will be utilized by ICF-MR facilities for initial UR submissions as well. ICF-MR LOC Form Please be sure to fax the ICF-MR LOC Form to 828-452-3473 to the ATTENTION of IDD UR documents/dd_services/ICF-MR_LOC_Form.pdf

NC START (North Carolina Systemic, Therapeutic Assessment, Respite and Treatment) Program

The NC START Model provides prevention and intervention services to individuals who are at least 18 years of age with developmental disabilities and complex behavioral needs through crisis response, training, consultation, and respite. The goal is to create a support network that is able to respond to crisis needs at the community level. Providing community based, person centered supports that enable an individual to remain in their home or community placement is the first priority. NC START does not replace any element of the current service continuum but works in conjunction with all other services NC START Brochure NC START FAQ

North Carolina Rules and Laws

NC Administrative Code reports.oah.state.nc.us/ncac.asp NC General Statutes www.ncga.state.nc.us/gascripts/statutes/Statutes.asp Diversion Law Senate Bill 859, also known as the Diversion Law, prohibits the admission of an individual with mental retardation, or a reasonable suspicion of such, to any of the North Carolina State Psychiatric hospitals unless the individual meets specific criteria. www.ncdhhs.gov/mhddsas/developmentaldisabilities/dd-definitions.htm#diversion For a complete reference, please refer to NCAC 122C-261(f). www.ncga.state.nc.us/EnactedLegislation/Statutes/HTML/BySection/Chapter_122C/GS_122C-261.html

Residential Services

How to get a consumer on the wait list for a residential slot Download the “State Funded Residential Referral Profile” form from this website. Use the link below to view the authorization section of this website to access that form. ../documents/providers/authinfo/SMC_StateFundedResidentialReferral.doc The completed form should be submitted to the SMC Service Management Department via fax at 1-877-651-9968. Expect to receive confirmation that we have received this form within 2 business days of our receipt of your fax. If you do not hear from us, please re-send the fax or phone someone in our Service Management Department. NC Division of Health Service Regulation The Division of Health Service Regulation oversees medical, mental health and group care homes, emergency medical services, and local jails. They check to see that people receiving care in these facilities are safe and receive appropriate care. They make certain that medical buildings are built only when there is a need for them. www.ncdhhs.gov/dhsr/index.html Please see the SMC Provider Search tool on this website for a listing of services. Find a Provider

	Service Definitions
For I/DD services managed through the Division of MH/DD/SAS or DMA use the link below to view the Authorization Info section of this website for more information. SMC Authorization Info Other Medicaid-funded services: Home Health Services www.dhhs.state.nc.us/dma/services/homehealth.htm Personal Care Services (Medicaid) www.dhhs.state.nc.us/dma/services/pcs.htm

	Social Security
Social Security Administration For information on benefits such as SSI, Medicare, etc. go to the following link: www.ssa.gov

Supports Intensity Scale (SIS)

The Supports Intensity Scale™ (SIS) is a tool designed to measure the relative intensity of support each person with developmental disabilities needs to fully participate in community life. In the NC public system, individuals with CAP-MR/DD choosing to self-direct their services, and individuals with high medical and/or behavioral needs will be prioritized to have a SIS completed. NC Division MH/DD/SAS See this page for more information including a brochure, Questions & Answers (contact information at the State), and Additional Resources and Information that links you to the DDTI website where individuals, families, guardians and advocates can find information such as Tips for Respondents and a Fact Sheet for Children. www.ncdhhs.gov/mhddsas/sis/index.htm Adult SIS Assessment Instrument - Adobe PDF Child SIS Consent Form for Families - Word DOC Child SIS Version - Adobe PDF SIS Case Management Training - Word DOC SIS Examiners List - Word DOC SIS Case Manager Training - Adobe PDF or Microsoft PowerPoint PPT American Association on Intellectual and Developmental Disabilities (AAIDD) www.siswebsite.org

	TRACK (Therapeutic Respite Addressing Crisis for Kids)
Crisis service for children with a Intellectual/Developmental Disability, age 5 – 17. Use the link below to view the Authorization section of this website for more information. SMC Authorization Info

Training and Education

Developmental Disabilities Training Institute The Institute works to share knowledge, skills, and foster improvements of services and supports for persons with intellectual/developmental disabilities in North Carolina in a variety of ways. This goal is currently accomplished through providing community based training events, technical assistance, and the development of training tools. www.unc.edu/depts/ddti/ Diagnostic Manual—Intellectual Disability (DM-ID) A manual developed by the National Association for the Dually Diagnosed (NADD) in association with the American Psychiatric Association (APA) that is an adaptation of the DSM-IV-TR. The title of this manual is DM-ID: A Textbook of Diagnosis of Mental Disorders in Persons with Intellectual Disability. An abridged version is published as DM-ID: A Clinical Guide for Diagnosis of Mental Disorders in Persons with Intellectual Disability www.dmid.org/clin-intro.htm IPRS 2012 Service Plan documents/dd_services/IPRS_2012_ServicePlan.doc SMC MCO & Provider Care Coordination documents/dd_services/SMC_MCO_Provider_Care_Coordination.pdf Residential And Periodic QP Training Presentation documents/dd_services/Residential_And_Periodic_QP_Training.pdf IDD TCM Transition Training for Periodic and Residential Services Providers (Qualified Professionals) commbulletins.asp?id=2647 ALL I/DD Provider AGENCIES – IMPORTANT CLARIFICATION ABOUT TCM TRANSITION INFORMATION commbulletins.asp?id=2654

	Traumatic Brain Injury (TBI)
NC statute defines TBI as a Intellectual and Developmental Disability. Use the link below to view the TBI section of this website for more information. SMC TBI Webliography

	NC Innovations Utilization Review
I/DD Clinical Guidelines documents/dd_services/IDD_Clinical_Guidelines.pdf Individual Service Plan (ISP) Review Criteria documents/dd_services/ISP_ReviewCriteria_Unmodified.doc Minimum NC Innovations Service Specific Approval Requirements documents/dd_services/MinimumNC_Innovations_Service_Specific_Approval_Requirements.docx